The Art of ALS Adaptability OCTOBER 16, 2018 BY DAGMAR MUNN IN COLUMNS, LIVING WELL WITH ALS - A COLUMN BY DAGMAR MUNN. Life with ALS often feels like a crash course in adaptability but being adaptable doesn’t come naturally for many of us. However, whether you’re the patient, caregiver, or a family member, I believe you can learn … Continue reading Reblog: The Art of ALS Adaptability
Reading
I love to read and enjoy sharing my takeaways
Reblog: ALS and Faith
Why I’m Taking Exception to Stephen Hawking OCTOBER 24, 2018 BY RICK JOBUS IN COLUMNS, NOTES FROM THE ALS FRONT - A COLUMN BY RICK JOBUS. Renowned physicist and author Stephen Hawking, perhaps the most famous ALS sufferer after Lou Gehrig, had his final book posthumously published on Oct. 16. In “Brief Answers to the Big Questions,” … Continue reading Reblog: ALS and Faith
10.24.18 Wed-Nes-YAAAAY
Tuesday was so good I had to raise my personal fundraising goal to $1750 AND WE'RE ALMOST THERE! Please consider making a donation by clicking here. Ok, enough about me. Team SunnyStrong is legit killing it. Saturday is going to be awesome, we're going to cause a ruckus and take a stand against ALS. Here … Continue reading 10.24.18 Wed-Nes-YAAAAY
10.12.18 Cuisine for Healing
Last Friday I had the opportunity to Lunch with some amazing Fort Worth Ladies that all work in healthcare and provide encouragement, networking, and support for each other. I think we can all agree that gathering together, for any purpose, is good for the soul. I've missed that component of working, and Friday was a … Continue reading 10.12.18 Cuisine for Healing
10.9.18 If Parkinson’s, Why Not ALS?
I promise to get back on track with blogging and rallying the troops for the ALS Walk on the 27th. I wanted to share this with y'all because, if you recall, the Azilect drug trial was the very first trial I ever participated in. I later found out that during my one year enrollment, I … Continue reading 10.9.18 If Parkinson’s, Why Not ALS?
10.4.18 Radicava-aversary
One year ago today I started on my journey with Radicava Ridiculousness. It's been a hell of a year, port placement - my first surgery - and two followup procedures to keep it working properly, a fun stay in the Baton Rouge emergency room - sarcasm - and lots of trips and new caregivers … Continue reading 10.4.18 Radicava-aversary
10.3.18 Let’s Get Social
https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2FALSTexas%2Fvideos%2F238135096878184%2F&show_text=0&width=560 Now that you've read about the walk , blocked October 27th on your calendar, and joined Team SunnyStrong, now it's time to get social! See the video above for instructions on how to link your personal fundraising page with FB. Not on FB? Share your personal fundraising page by clicking the Send Email link … Continue reading 10.3.18 Let’s Get Social
The 10%
via The 10%
10.1.18 It’s Walk Month
via Unlock ALS Honors the Real Reasons We Walk to Defeat ALS Are you ready to do this dance? Team SunnyStrong has some wonderful, fun surprises for y’all this month and we’ll discuss them every day in October. Your job for today? Read the article above from the ALS Association. Happy Monday!
9.28.18 Finding Joy
I am hooked on Tova Sido's podcast called The Remedy. If you're not subscribed to her, do it right this second - it will change your life, your daily perspective, and maybe baby you'll learn something. If you haven't joined the podcast world, don't worry you're not too far behind, but it's crucial that you … Continue reading 9.28.18 Finding Joy