10.11.19 #alssymp

29th Annual International Symposium on ALS/MND Patient Fellow Program Background: "The key to defeating MND lies in fostering strong collaboration between leading researchers around the world, and sharing new understanding of the disease as rapidly as possible. This was the MND Association’s rationale behind the creation of the International Symposium on ALS/MND." - MND Association … Continue reading 10.11.19 #alssymp

10.10.19 Our Next Adventure Is To…

Y'all this is insanity. I am humbled to be accepted to represent the ALS community on a global stage, and Perth, Australia is just going to be mindblowingly beautiful. Click HERE to hear from our fearless leader, Cathy, about the Patient Fellows Program and the importance of having patient voices represented at this symposium. Scotland … Continue reading 10.10.19 Our Next Adventure Is To…

10.07.19 CRLI Graduates

Coming home from Florida is always tough, it's just sooooo pretty. Kenneth and I flew in early so we could attend the scientific symposium during the 2019 NEALS Consortium. "The mission of the Northeast ALS Consortium (NEALS) is to rapidly translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis … Continue reading 10.07.19 CRLI Graduates

10.3.19 Rare Across America

We talked about Rare Across America, remember? Well they announced yesterday that 303 meetings took place during the Summer Recess. More info is included below from RDLA about all of the exciting updates that came out of these meetings. I was lucky to participate in 3 of those meetings and on top of making new … Continue reading 10.3.19 Rare Across America

7.25.19 Endorsement Needed

I was nominated for the WEGO Health Awards Best Kept Secret Category and that's pretty stink'n cool. I'd never heard of WEGO Health before, but I've jumped in with both feet and so far it's been awesome. Below is info from the FAQs that I found helpful and interesting. What I need from you:  Go … Continue reading 7.25.19 Endorsement Needed

7.22.19 SunnyStrong Loves Hico

It's been 15+ years since I rode in the Old Settlers Reunion Parade in Hico. Thursday night was one for the nostalgia books and goodness it was fun. Chester always gets the best pictures, you can see more of his work and contact him to shoot your next event HERE. July is insanely hot, thankfully … Continue reading 7.22.19 SunnyStrong Loves Hico

7.17.19 Richter Racer

Well, Jake is doing it again but this time it's a different 100 mile course. Refresh yourself on his race last year in Ouray here. We love Jake and his wonderful family. I'll continue to keep everyone updated on their adventure and throughout the race on July 26 - 27. HIGH LONESOME 100 ENDURANCE RUN … Continue reading 7.17.19 Richter Racer