sweet nurse natalie took great care of me surgery went well and we’re heading home thank y’all for the prayers, encouragement and love. this port party is ready for a nap
10.30.17 Surgery Day!
Port Party is officially upon us! I’d be lying if I said I wasn’t a nervous wreck. My focus all last week was getting to the wedding, and now that the wedding was perfect I’m left without distractions. Look how beautiful the brand new Powell’s are: (how’s that for distraction?) I’ve never had surgery before, … Continue reading 10.30.17 Surgery Day!
10.26.17 Cat’s Outta the Bag
Last week I shared with y’all about some upcoming transitions that are coming up in the Erasmus house. My last day with JA is going to be Friday, November 3rd. The decision to leave JA and file for disability is not an easy one, but the opportunity to focus on my family amidst this disease’s … Continue reading 10.26.17 Cat’s Outta the Bag
10.24.17 Why Does #ALSSuck ?
We’ve kicked off our Mudlove Campaign and so far we’ve done an excellent job of getting the word out. Now that we’ve started receiving our Mudlove products, let’s really make this campaign work. Using a pic of your Mudlove swag, tell the world why #ALSSucks Don’t have Mudlove swag yet? Get yours today! https://www.mudlove.com/products/sunny-strong For … Continue reading 10.24.17 Why Does #ALSSuck ?
Present Over Perfect
This book transformed my marriage, my personal and professional life, and my outlook on the future. This journey has been about love, about worth, about God, about what it means to know him and be loved by him in a way that grounds and reorders everything. Years ago, a wise friend told me that no … Continue reading Present Over Perfect
Lilac Girls
Somewhere in a corner of our hearts, we are always twenty,” I said. How many times had Mother said that? “The best of life is but intoxication,” Paul said, as he poured cognac into my glass. “You have a choice. To wallow in the unfairness of it all or rise above it. Fix it. Let … Continue reading Lilac Girls
Jaws
“The fish broke water right beside the boat, with a great rushing whoosh of noise. It rose vertically, and in an instant of horror Brody gasped at the size of the body. Towering overhead, it blocked out the light. The pectoral fins hovered like wings, stiff and straight, and as the fish fell forward, they … Continue reading Jaws
10.23.17 Port Party
Not to be confused with a porta potty Round 1 of Radicava Ridiculousness is done, whoooo hoooooo! As promised, port placement is taking place before round 2 starts. We’re kicking off this “Port Party” on Monday, October 30. Surgery should take about an hour and I’ll be back at work on Tuesday. No more IVs … Continue reading 10.23.17 Port Party
10.20.17 And We’re Walking
We are looking forward to this year's ALSA Walk to Defeat ALS on November 4th at Trinity Park. Please join us either in person or as a virtual walker by registering here. Check in is at 9, the walk begins at 10, then we're heading over to Capital Bar for the After Party from 12 … Continue reading 10.20.17 And We’re Walking
Round 1 Complete!
ALSFRS-R: 34 I don’t notice any changes, but it’s not worse and that’s exciting, right? Hopefully getting my port scheduled soon, spoke to the doctors office today. Taking a two week break then Round 2 is 10 administrations over a 14 day period. Planning to get that started on November 2nd or 3rd. Excited for … Continue reading Round 1 Complete!
SunnyStrong 