busy, busy week and just realized we haven't chatted this week - sorry! I know, I miss you too! Here's a silly Ian video to hold you over. We'll be in touch very, very soon! Have a wonderful weekend!
Erasmus
Married 11/12/16, My husband Kenneth and I are loving this crazy life of ours with our service dog, Baloo, and grumpy cat, Ian.
Reblog: Oral Edavarone
I wrapped up Round 9 of Radicava Ridiculousness last week and was VERY excited about these findings 🙂 Reblogged from ALS News Today Treeway’s Oral Formulation of Edavarone for ALS Shows Promise in Phase 1 Trial MAY 31, 2018 BY JOSE MARQUES LOPES, PHD IN NEWS. An experimental oral formulation of edavorone for amyotrophic lateral sclerosis (ALS), called TW001, … Continue reading Reblog: Oral Edavarone
6.1.18 Saturday the 19th
This should the last catch up post, I told you that week was crazy. So Carlie and I returned from DC on Wednesday and I spent all of Thursday in my jammies relaxing. Hiding out at my mama's house in Hico is good for rest and relaxation. Friday was prep day for the 15th Annual … Continue reading 6.1.18 Saturday the 19th
5.31.18 That’s a Wrap
May is ALS Awareness Month and I think we can all agree that SunnyStrong gave it everything we had. The ALS Association used the theme of "Raise Your Voice" for this year. There are many things that ALS has taken away from me, but my voice is loud and persistent in the fight to end … Continue reading 5.31.18 That’s a Wrap
5.26.18 Sunday the 13th
6am flights after a two hour power nap are tough, but we made it work. Luckily, Tanner was on our flight and he literally took care of everything - including drink tickets 😉 Everyone needs a Tanner. We learned that Texas is considered "Tanner Country" and after 4 days watching him work and seeing his … Continue reading 5.26.18 Sunday the 13th
5.25.18 Saturday the 12th
Do you remember this cartoon? Huckleberry Hound My Brotherman showed his age during breakfast that morning and we all sang "Oh my Darlin" for the rest of the day. Best part of slumber parties at Wendy's is breakfast. I took full advantage of a lazy Saturday before heading to Dublin for the wedding. Doing life … Continue reading 5.25.18 Saturday the 12th
5.23.18 Friday the 11th
Catching everyone up on one of the most impactful weeks of my life. It all started with a date with my husband to ALS Clinic with Dr. Heitzman and his team. Kenneth and I rarely have day dates, so this was a real treat. ALS is tough on all of us, but Kenneth gets the … Continue reading 5.23.18 Friday the 11th
5.20.18 Bumpkins
i'll fill ya in on the week soon, but wanted to make sure y'all saw this amazing commercial for the #bigassboot happy sunday!
5.18.18 I Miss My Friends
"And with a broken wing, She still sings, She keeps an eye over the sky. With a broken wing, She carries her dreams, Man you oughta see her fly" - Martina McBride We had to get creative in DC with our picture because I forgot to print out actual pics. Mad props to Carlie's awesome … Continue reading 5.18.18 I Miss My Friends
PSA #3: “Good Night”
Jason Walker was diagnosed with ALS 14 years ago. He started dating his wife three years after his diagnosis, and they have been married for 4 years. Their daughter, Eloise, was born 17 months ago. He has used a tracheotomy and feeding tube since just after his wedding. He says the experience of appearing in … Continue reading PSA #3: “Good Night”
