2.5.18 Winner Winner Winner

THANK YOU for playing! Congrats to the winners and we'll be doing this again next year! And THANK YOU to those who have donated their winnings back to Sunnystrong! 1st Quarter - Patriots 3 Eagles 9 Board 1 Winner - Mary Brous Board 2 Winner - Victor Sanchez Board 3 Winner - Thindy Sims 2nd … Continue reading 2.5.18 Winner Winner Winner

2.4.18 Whoa

Whoa, you guys are insane! Kenneth and I discussed doing a Super Bowl Squares board since my 31st birthday fell on Super Bowl Sunday with the expectation of it not selling out. You guys exceeded our expectations, three times, and as a result $1500 is going to SunnyStrong. We can't wait to see who the … Continue reading 2.4.18 Whoa

2.2.18 Trevor Noah

"Traveling is the antidote to ignorance" - Trevor Noah Pretty excited about today's agenda. When Kenneth and I first met we traveled a lot, weekend trips, weddings, etc. and now we still go more than I'm sure he'd prefer to, we don't get many weekends of unrushed roadtrips. I'm looking forward to the conversation, the … Continue reading 2.2.18 Trevor Noah

2.1.18 New Year

Starting 2018 on January 1 is like starting a diet on Monday - likely to fail and way too much pressure. So now that we've had a month of scratching out the '7' on our dates and correcting to '8' it's time to really get 2018 going. We learned a lot in 2017: bought a … Continue reading 2.1.18 New Year

Reblog: Divorce or Death, a Real Life Decision

THE BLOG  07/26/2016 09:51 pm ET Updated Dec 06, 2017 Divorce or Death, a Real Life Decision By Jay Smith JAY SMITH 890 When I was diagnosed with ALS, I was given two years to live. Two and a half years later here I am typing this article using my eyes, while being fed through a tube … Continue reading Reblog: Divorce or Death, a Real Life Decision

1.30.18 Three is my Favorite Numba

Yesterday was a big day for a couple of reasons: 1. Round 5 of Radicava Ridiculousness is rockin right along - 4 days down, zero excitement to report. 2. It's officially my last week of Short Term Disability and I celebrated by sleeping until 2PM - homegirl was sleepy. 3. Our house is finally getting … Continue reading 1.30.18 Three is my Favorite Numba

Busy Phil

It's been a busy week for our skinny crusader: Rebel on the flight to Denver Denver Rodeo Speakeasy finder Red Rocks YP Night at the Rodeo Annual family corndog date at FWSSR

1.26.18 ‘Just remember you have every right to be here’

“Maybe that memory - plus the data - would give neurologists more confidence to launch into those tough conversations, and we patients wouldn’t have to wait as long to be diagnosed. Or maybe their empathy would empower us to make decisions earlier, before they have to step in and force one when the situation has … Continue reading 1.26.18 ‘Just remember you have every right to be here’

1.24.18 Squares for Sale!

https://www.facebook.com/plugins/post.php?href=https%3A%2F%2Fwww.facebook.com%2FSunnyStrongALS%2Fposts%2F941233046051203&width=500 Fun Fact: Every 7 years Sunny's birthday falls on Super Bowl Sunday! This year we're combining two of America's favorite things: Gambling and Charity! The first board sold so quickly, that we opened a second board! Each square is $10, 50% of the total will be donated to SunnyStrong and the other 50% divided evenly … Continue reading 1.24.18 Squares for Sale!

1.20.18 Three Years Ago Today

January 20, 2015 is a day that changed my life in so many ways. Yes, I'd give it back if given the chance because ALS sucks, but hear me when I say that not everything that it has brought into my life has been bad. I'm busy, you know it, I know it, ALS fights … Continue reading 1.20.18 Three Years Ago Today