MARCH 8, 2018 BY WENDY HENDERSON One of the most frustrating symptoms of living with a chronic illness is brain fog. There are medications to treat many symptoms of chronic diseases, but sadly there isn’t yet a pill that takes away brain fog. However, there are ways to deal with it so patients can minimize its … Continue reading Reblog: 9 Ways to Manage Brain Fog
radicava
3.8.18 Throwback Thursday
It's been a while since we really chatted about what's been going on. February is easily my favorite month - birthday month, duh - but it always goes by entirely too fast. We didn't do a big birthday bash like normal but we sold the heck out of some Super Bowl squares and over $1500 … Continue reading 3.8.18 Throwback Thursday
2.20.18 Losing My Mind
So remember when our house flooded in January? Yeah we're finally getting flooring done this week, thank goodness. It's been exhausting and dirty and exhausting but I cannot wait to see the final product. Determined to stay optimistic, dammit. ALS Clinic on Friday was fun and marked my 3 year anniversary of being in the … Continue reading 2.20.18 Losing My Mind
2.15.18 Paula the Port
Monday I had a hot date with Nina the Great at UTSW for a punch biopsy for nerve fiber layer density, kachow! This donation was for a couple of friends of my cousin Tyler's who have a lab at UCSF and as you know, research is always in style. Appointment was painless and I got … Continue reading 2.15.18 Paula the Port
Round 5 – Done!
had a cute nurse today and Baloo loved her being here
2.8.18 My Village
"Train up a child in the way he should go, and when he is old he will not depart from it" (Proverbs 22:6).I have been blessed with an elaborate, intricate circle of family and friends that would take years to decipher and discuss. All of these blessings, memories, and relationships collide one day a year, … Continue reading 2.8.18 My Village
2.1.18 New Year
Starting 2018 on January 1 is like starting a diet on Monday - likely to fail and way too much pressure. So now that we've had a month of scratching out the '7' on our dates and correcting to '8' it's time to really get 2018 going. We learned a lot in 2017: bought a … Continue reading 2.1.18 New Year
Reblog: ALS Ice Bucket Challenge Year-End Update: Over $94 Million in Commitments Since 2014
https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2Fsunny.brous%2Fvideos%2F10100219149410176%2F&width=500&show_text=true&height=1019&appId 8/19/14 via ALS Ice Bucket Challenge Year-End Update: Over $94 Million in Commitments Since 2014
1.30.18 Three is my Favorite Numba
Yesterday was a big day for a couple of reasons: 1. Round 5 of Radicava Ridiculousness is rockin right along - 4 days down, zero excitement to report. 2. It's officially my last week of Short Term Disability and I celebrated by sleeping until 2PM - homegirl was sleepy. 3. Our house is finally getting … Continue reading 1.30.18 Three is my Favorite Numba
Round 4, 8&9&10
ALSFRS-R: 35 Round 4 is done. Round 5 starts 1/26/18 No news is good news, and thankfully no side effects. Other than to the tecaderm, but we knew that. Also, I earned my "dot" where the needle goes so accessing is even easier. see it? see it? see it? another round of radicava ridiculousness complete!
SunnyStrong 