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8.8.18 Tommy Boy

August 8, 2018 / sunnystrongblog

My cousin Thomas taking the ALS Ice Bucket Challenge for SunnyStrong!

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Adventures for SunnyStrong

Adventures for SunnyStrong, ALS - SunnyStrong, Awareness, Erasmus, Ice Bucket, Reading

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#Repost @skalpakoff with @get_repost ・・・ "It's not going to be easy, but it's going to be awesome. Awesome ain't easy." -Steve Gleason @teamgleason

#Repost @projectrubie with @get_repost ・・・ A friend posted on Facebook that 'sometimes you just want a hug from your mom.' So, I sat there trying to remember the last time I had an arms-wrapped-tight hug by mom and broke down crying on the spot. This weekend, when I hugged my mom Goodbye after our visit, she couldn't hug me back at all. She just turned her neck and head into me to reciprocate. Every new stage of ALS is devastating. But as my sister said: "Let it out, then put your strong pants back on." #grief #griefjourney #ALS #lougehrigsdisease #alssucks #ALSstrong #ALSCanada #alsbc #showyourheart #familytime #motherhood #motheranddaughter #hugyourmom

#Repost @als with @get_repost ・・・ “Three words that describe me are kind, respectful, and calm. Being raised in farm country, everyone has the duty to help out one another. Helping others is what I live for. So [ALS really took] me by surprise when we were diagnosed. I say ‘we’ as ALS really does affect a whole family and a whole community. We knew well what ALS was because my wife’s grandfather, two aunts, and two first cousins had died from [the familial version of] ALS. My wife had watched so many people suffer from this unbearable illness. We were beyond shocked when I was diagnosed [with ALS] in May 2017. I always joked that I wanted to retire at age 50. I never thought it would be because I was no longer able to work due to an incurable illness. ALS forced me to retire. [It] starts to rob you of everything. First, it’s needing help with the little things, like putting on a jacket or carrying luggage. Then it becomes the big things, like using the bathroom and feeding [yourself]. I rely so much on my loved ones for help [but] never want to be a burden. When you have ALS, you know you are going to die. You try to make the most of every day. I hope my wife knows how much I love her!” - Kevin M., Illinois #ALS #MND #OurALSCommunity #PortraitsofALS

hey! i know them 💜💜 #Repost @augiesquest with @get_repost ・・・ November is National Family Caregivers Month – a rather poignant and on-point month to celebrate caregivers. Another hallmark of November is, of course, Thanksgiving and the month we tend to reflect on what we are most thankful for. It is only appropriate to celebrate these two together—caregiving and thanksgiving—for it is the caring and giving by friends and family for which I am most thankful. ❤️ • Link in bio to read More! • • #nationalfamilycaregiversmonth #hope #family #love #thankful #caregivers #november #augiesquest #augiesquestforals #endals #cureals #als

lunch with new friend: ✔️ blood work complete: ✔️ ice cream reward: in progress read #rachelhollis post below, she’s my newest #girlcrush and total #bossbabe 😍 make thursday GREAT 💜🌻 #Repost @msrachelhollis ・・・ In the last week I've posted two things here on Instagram that got immediate vitriol. Were they political statements or angry opinions that ripped other people apart? Nope. They were inspirational quotes. I put them up because I love inspirational quotes and I thought maybe you'd like them too. . Today I shared a quote card made by a fan, inspired by the new book. It was based on a Thomas Jefferson quote... In an actual book, you cite the author of a quote. It's listed in both the paragraph and the sources at the back of the book. In something made by a fan, the full context doesn't usually make it. "Why don't you come up with an original idea you piece of sh*t?!" That comment was one of MANY. A freaking quote card guys. It never occurred to me that someone might find negativity in an inspirational quote created by a fan. I ended up pulling it down because it's bad enough when people attack me but I don't want strangers attacking the creator of the work. The other quote from last week got HUNDREDS of nasty comments because I spelled a word wrong, "Encouraging people is all well and good," one person wrote, "but how about you learn to f*cking spell first." Dang. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ My community will always be a place for positivity. Not perfection, positivity. Nobody is perfect here, least of all me. If you're looking for a perfect woman, mom, writer, Christian or spelling bee champ you've come to the wrong gal. . Also, I'm not going to stop being positive. I'm not going to stop creating joyful content. I'm not going to quit reaching for gratitude-- even gratitude in getting to interact with mean girls on the internet because they remind me of who I am and who I never want to be. I'd rather be imperfect at positivity than perfect at pointing out other people's flaws. I'd rather spell the kind words wrong than never use them at all. I'd rather work to create things than work to destroy creations. I'm going to keep trying to offer light -- darkness isn't welcome

https://sunnystrong.com/2018/11/14/11-14-16-puravida-bracelets/ #lougehrigsdisease #alssucks #als #sunnystrong #puravidabracelets #puravida #puravidarep #alsawareness

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