Steve Gleason. 9 years with ALS, countless lives impacted by his dedication to fighting this disease, legislation changes, technology improvements, awareness, rewriting of the narrative of diagnosis, and the list goes on and on. This disease is devastating, and Steve has been an agent of change in every area impacted by this life interruption. He … Continue reading 1.15.20 Not All Heroes Wear Capes
#TalkALSToMe
1.3.20 We’ve Come a Long Ways
Today is our 3 year blog-aversary!! I love seeing who views from around the world. We have some exciting announcements coming up soon! Thanks for continuing to love and support me through this disease.
1.1.20 Decade in Review
2010 Sunnylet’s see... 2010 - I was living in San Marcos with Thomas and Will, and Marg & Cass & I started the Tant Shepherd fan club and followed him around watching baseball, experienced my first and last halloween on 6th Street in Austin, went on Mancation to Ruidoso, and to Florida and knocked out … Continue reading 1.1.20 Decade in Review
12.3.19 Cheaters for Everyone
Well, it happened. I'm not proud of it, still embarrassed of it, and it's shadowing my every move. I have been scarred forever. It was awful. It was hysterical. It happened. Everyone, I'd like to introduce you to Behemoth. This fine piece of machinery is as powerful as it is monstrous. We decided to leave … Continue reading 12.3.19 Cheaters for Everyone
Proof of Life – Perthfecta Day 2
12.2.19 It’s Tomorrow Here
My phone tells me it's Monday morning. My body is convinced it's still Friday and we didn't take a very large time machine around the world. All three of us were so nervous Friday that we were nearly manic. No one could articulate why we were so nervous, but once we got together at the … Continue reading 12.2.19 It’s Tomorrow Here
11.30.19 Caregivers
As we wrap up Caregiver Month, I'd like to thank each person who plays the role for another. In Jeff Foxworthy fashion, you might be a caregiver if: you've ever helped us get from one place to the other you've ever got us dressed you've ever held our hand in a store you've ever helped … Continue reading 11.30.19 Caregivers
11.29.19 This is for you, pALS
I've removed all the unnecessary hair, and what's remaining has been waxed, cut, and colored accordingly. My suitcase is bulging with who knows what, and I can already think of 5 things I'll have to get there. You'd think I'd be a pro by now, we'll see what happens. We are soon to board the … Continue reading 11.29.19 This is for you, pALS
11.26.19 Losing My Mind
All things chaos, #alssymp and Sunny Putters & Gutters Lampasas
11.14.19 Catching Up
Y'all know me, always late and behind. It's part of my charm, er something like that. Anyways, let's catch up a bit shall we? Friday the 8th was clinic day. Tonya and I had so much fun yakin' and catching up that we didn't get a single picture. So you'll just have to trust me … Continue reading 11.14.19 Catching Up
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